Tag: Rare disease awareness
Father’s Push for Rare Genetic Disorder Treatment Reaches Milestone
California lobbyist Joe Lang has dedicated over a decade of his life to pushing for a cure for his daughter’s ultra-rare genetic disorder. A seasoned veteran in shaping California policy since the 1980s, Joe...
Living with Stiff Person Syndrome: Patient Experiences and Insights
Stiff Person Syndrome (SPS) is a rare neurological disorder that has gained attention due to singer Celine Dion's battle with the condition. This disease affects only one or two people per million, causing muscle...